So Arianna had a low grade fever for two days, then yesterday afternoon she went up to 103.1. I took her into the the doc, and while there she started to have seizures due to the high fever. We did all the normal test and her CBC came back at 21,000. We are still waiting on the H1N1 test to come back but her doc started her on Tamaflu anyway. She doesn't have the high fever today, and seems act a little happier, but she is not yet out of the woods.
We have however found a house that looks like it would work well for us, with a bit of fixing up/updating. It is on a huge chunk of land, .74, Kenna loved the backyard and ran around it for an hour. We are putting in an offer today, lets hope we can get it!!!
Thursday, October 22, 2009
Tuesday, October 20, 2009
Oh Arna
So I got a call from Arnas school nurse, she was concerned cause she could keep Arianna awake, and she had a slight temp of 99.2, but her O2 sats were fine. She slept the whole bus ride to school, fell asleep during art, and slept through a face wash(she hates to have her face washed). So I rushed on up to the school to get her and bring her home. She was awake and playing in the sensory room when I got there, but I took her home anyway. She was happy and alert the whole ride home. I am doing her vest treatment right now to help clear out any junk in her lungs, and I think I will do a few extra today. She doesn't seem to have a fever anymore, but I will keep that in check too.
Her Doc is out of the office today, and the other doc thinks I should take her to PCMC if she doesn't improve. I think I will tough it out at home, no way do I want to be in the hospital, it is full of H1N1, no thanks.
Pray she only gets better from here.
Her Doc is out of the office today, and the other doc thinks I should take her to PCMC if she doesn't improve. I think I will tough it out at home, no way do I want to be in the hospital, it is full of H1N1, no thanks.
Pray she only gets better from here.
Doing Pro-Active things
I have decided to take charge of my own feel goods. I have started running in the morning after I drop Kenna off at school. So far so good. I have run three miles both yeasterday and today. I feel so energized and happy, both of which I need. I spent most of this past weekend feeling depressed, lost and lonely. I miss being in my own home with my own space, but I do love being with my parents, they are a great help to me. I have lost touch with my friends and don't really have anyone my own age to hang with.
So yesterday I said I will make my own happy. I will reach out to my friends, make adult playdates, and take care of my Psyche.
I took the kids to get their hair done. Kenna had 8 inches cut off, it looks really cute and does this little flip. Arianna was not much into holding still but we got it trimmed up so it is all even, now it curls more! I will post pics when I figure out my parents computer.
I had a doughnut date this morning with Kenna at her school. We read a book while eating and drinking chocolate milk, it was fun, of course she didn't want me to leave when it was time for school to begin, this is the first time she has cried at school.
Arianna was to go on a field trip to This is the Place park today, but it got postponed until tomorrow due to the rainy weather. Hope it works out.
So yesterday I said I will make my own happy. I will reach out to my friends, make adult playdates, and take care of my Psyche.
I took the kids to get their hair done. Kenna had 8 inches cut off, it looks really cute and does this little flip. Arianna was not much into holding still but we got it trimmed up so it is all even, now it curls more! I will post pics when I figure out my parents computer.
I had a doughnut date this morning with Kenna at her school. We read a book while eating and drinking chocolate milk, it was fun, of course she didn't want me to leave when it was time for school to begin, this is the first time she has cried at school.
Arianna was to go on a field trip to This is the Place park today, but it got postponed until tomorrow due to the rainy weather. Hope it works out.
Friday, October 16, 2009
I haven't been much up to posting lately, I have had so much to ponder and consider in this life. With the passing of Tessa brought to my mind, again, the reality of Arianna's life and eventual passing. There are those days when she seems like any other child, learning and laughing at the life in front of her. I do so cherish the days I have been blessed with, but I also ponder why was it me, why have I been given the chance to raise this choice spirit. I know that she is here to teach me so many things, and raise me to be everything the Lord has planned for me.
Our life with Arianna has has its ups and downs, by far less downs then many of our friends, but we do have our trials. Watching her teach herself to crawl and her tummy, to sit up on her own, these things seem to have blotted out the nights of endless worry that she will not make it to another morning. I continue to question myself, did I do all that I could for her, to give her all that was necessary to make her life wonderful, happy and comfortable. She always reassures me with her death grip hugs and open mouth kisses on my cheek. I know that at the end of the day she has gone to sleep happy.
I know that my biggest trial in this life is to make sure I have done all I can for Kenna. She often gets left out or forgotten. Her feelings easily hurt. She has been through so much in the past 3 years, I only wish I knew how to make it all run smoothly, to give all that both of them need without running myself into the ground in the process. I continue to struggle with this.
I do tend to absorb what is around me, the mood or atmosphere in any given place, it is my biggest fault. I always seem to borrow others sorrow, it is not very healthy. I always want to make sure my family and friends are taken care of, I am a very generous soul. I rarely ever ask for the help I may need. One of the greatest benefits of living with my parents is that my mom wants to take care of Arianna, and is there to help me with her when Kenna needs my full attention. Even if I don't want it, but I do love her help.
This has just been my vent. My next post shall be much more fun and entertaining. Many good things have been going on.
Julianna
Our life with Arianna has has its ups and downs, by far less downs then many of our friends, but we do have our trials. Watching her teach herself to crawl and her tummy, to sit up on her own, these things seem to have blotted out the nights of endless worry that she will not make it to another morning. I continue to question myself, did I do all that I could for her, to give her all that was necessary to make her life wonderful, happy and comfortable. She always reassures me with her death grip hugs and open mouth kisses on my cheek. I know that at the end of the day she has gone to sleep happy.
I know that my biggest trial in this life is to make sure I have done all I can for Kenna. She often gets left out or forgotten. Her feelings easily hurt. She has been through so much in the past 3 years, I only wish I knew how to make it all run smoothly, to give all that both of them need without running myself into the ground in the process. I continue to struggle with this.
I do tend to absorb what is around me, the mood or atmosphere in any given place, it is my biggest fault. I always seem to borrow others sorrow, it is not very healthy. I always want to make sure my family and friends are taken care of, I am a very generous soul. I rarely ever ask for the help I may need. One of the greatest benefits of living with my parents is that my mom wants to take care of Arianna, and is there to help me with her when Kenna needs my full attention. Even if I don't want it, but I do love her help.
This has just been my vent. My next post shall be much more fun and entertaining. Many good things have been going on.
Julianna
Saturday, October 10, 2009
Food for Comfort
I borrowed these from Becky's blog, but I feel that they express so much of what is needed today. The soul needs to be fed with comfort words.
Russell M. Nelson
"Parents who have surrendered the sweetest and smallest flowers from the family's garden need to remember our Heavenly Father. He has promised a special reward to those who now suffer in silence, who spend long days and longer nights through their trying times of bereavement. Our Creator has promised glory. He said, "For after much tribulation come the blessings. Wherefore the day cometh that ye shall be crowned with much glory; the hour is not yet, but nigh at hand."
(D&C 58:4) That promised glory includes the blessing of reunion with each child who has left the family circle to help surviving members of the family to draw nearer to God. Those children still live and are a heritage to the Lord."
Tessa Joy Bethards was laid to rest today, with the sun shinning bright in the sky. A calm and peace settled around, the joy of this little ones spirit filled us all.
Thank you to our Heavenly Father for this special gift, this special time with a choice spirit.
Russell M. Nelson
"Parents who have surrendered the sweetest and smallest flowers from the family's garden need to remember our Heavenly Father. He has promised a special reward to those who now suffer in silence, who spend long days and longer nights through their trying times of bereavement. Our Creator has promised glory. He said, "For after much tribulation come the blessings. Wherefore the day cometh that ye shall be crowned with much glory; the hour is not yet, but nigh at hand."
(D&C 58:4) That promised glory includes the blessing of reunion with each child who has left the family circle to help surviving members of the family to draw nearer to God. Those children still live and are a heritage to the Lord."
Tessa Joy Bethards was laid to rest today, with the sun shinning bright in the sky. A calm and peace settled around, the joy of this little ones spirit filled us all.
Thank you to our Heavenly Father for this special gift, this special time with a choice spirit.
Angel Wings
It is with a sad and heavy heart that I write this post. Sweet Tessa has returned home to her heavenly father. Thank you all for the prayers for her and her family. The true miracle of Tessa's life was realized, given the chance to meet her parents and brothers and sisters. The love and joy that she brought to the world you never be forgotten.
Thursday, October 1, 2009
Prayers for Tessa
Please pray for baby Tessa. She was born on September 30th, Full Trisomy 13 with a congenital diaphramatic hernia. She is stable and doing will on the oscillator, and will have surgery in 5 to 7 days to repair the CDH.
Her mom and my husband grew up together and their families are still close. We also went to high school together, but were only recently reintroduced due to us having Arianna and their prenatal diagnoses. I had the chance to meet Tessa today, and she is just so very beautiful. It brought back so many memories of our first days at PCMC after Arianna's birth. I grateful that this family has allowed me to be a prat of their journey, and I hope that I am a great source of info and comfort for them.
Please keep them in your prayers, that Tessa will be stable enough for surgery.
Her mom and my husband grew up together and their families are still close. We also went to high school together, but were only recently reintroduced due to us having Arianna and their prenatal diagnoses. I had the chance to meet Tessa today, and she is just so very beautiful. It brought back so many memories of our first days at PCMC after Arianna's birth. I grateful that this family has allowed me to be a prat of their journey, and I hope that I am a great source of info and comfort for them.
Please keep them in your prayers, that Tessa will be stable enough for surgery.
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