Arianna Crawling

Just look at this girl go.

To watch my almost four year old learning to crawl is so amazing. To all the doctors and nurses that told us she would not live past a week, just look at her now. Defying all that you assume you know about this syndrome. We shall educate you, there is hope and a chance for life, a meaningful life. It may take years to learn what a typical child will do in mere months, but it is well worth the wait, the joy in my heart is overflowing. Yes she will not out live me, but while she lives she will amaze me. Thank you God for showing me the blessing of patience.

Thought for the Day, Life

God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with a chromosomal anomaly doesn't TAKE a special family, it MAKES a special family.

So very true. I got this from my friend on FB. Felt I needed to share it with all. Passes it along.

Wow....Tantrums and Achevments

Arianna has now figured out that 'if I cry someone will come'. And is throwing tantrums when you leave her in bed for the night. She has taken to knocking a floor lamp into her dresser with her feet (sticks her legs out through the rails and kicks), she knows we come in for that one.

I am excited to tell all, tonight she crawled, not far, maybe only as far as moving both hands and knees forward once, but that is huge. Of course I missed it, I was cleaning up from dinner and she was done performing when I got in the living room. I look at it this way, all the first I get to see and Matt misses, well he got to see this one and I missed it.

Life is so fun, the high and lows, the wild and crazy. I wouldn't trade this, I love my life!!

Matthew Update

******update******
I have been told that the bio famliy is now reconsidering, they want to bring Matthew home.
Please pray for the love an support that they need in this journey will easily find they.

More Prayers ar Needed

Please pray for this little one too. Little Matthew, born January 25th 2010, Full Trisomy 13. He is healthy at 6lbs 15ozs, and 19 inches long. Breathing on his own and eating from a bottle.
He needs a home and family. Please pray that hearts will be softened and humbled, that 'his' family will find peace with his diagnoses and love him and care for him, take him into their home and love him.

prayers please

Please keep Jaxson in you prayers tonight. he is in the hospital and all the strength you can send to him and his mommy is needed.

Arna just loves this boy!!!

update and pics of the house

Arianna has been sick all week, and we don't know what it is. Her VRP came back neg for everything. I have been treating her with oral steroids and her doc put her on omnicef due to an elevated white count of 18,600. not as bad as she has been in the past. She really just has more junk to suction, but otherwise is doing much better. Her phenobarb levels are normal, and the seizures have not returned. I know she wants to go back to school, she seems so bored at home with me.


So here are some pics of the house. no there is not one of the front, my camera died and I haven't gone back in the daytime to take one. but I will.


Living room Kitchen

back half of the back yard, front half of back yard,

Remember our house sits on a 3/4 acre lot.

back of the house

I will post pics of the bedrooms and front of the house tomorrow.