Big News!!!

So we have been to the doctor, and all is looking good. So I think it is time to share. We are expecting a new baby in Feb!! I can't tell you all how excited and scared I am for this new adventure. It has been 7 years since i had to care for a normal baby, don't know if I can still do it. Arna is truly easy when it come to so many things, I just hook her up and the food goes in while I go and do everything I have to get done. She is happy to just hang out and play with her toys, she doesn't like to be cuddled. I just don't know what this baby will bring.

Kenna is hoping for a brother, she thinks that would be cool. I also think it would be great to have a little copy of Matt running around.

I have been terribly sick with this baby, always nauseous, and so very tired. I don't remember it being like this with my others. but I am also a few years older too!

Life is good and always keeping us on our toes!

A little tease

just a few of my favs!

No more teasing!

The Internet is up and running and I have my own computer!!! I will be spending time here getting the pics from Florida up.

Oh and by the way....Today is our birthday!!! I still can't believe Arianna is 5.
I will also be spending time talking about the last five years and the joys we have shared!


More to come!!!

So Much to say, so little time

We have been to and returned from our Wish trip to Florida. What a wonderful time we all had. I am still weepy when I think of all that was done for us from those who volunteered to make our time there worry free. no cooking, no cleaning, and lots of love shared.
There are so many pics and some good videos to share, and I will I promise. I am trying to get it all worked out on the computer.

I just wanted to say to you all for now that we are doing really well, and Arianna is as happy as ever. I will spend a few days with my laptop and try to post all the good and fun stuff that we have been up to, please be patient with me.

Kauiai was Ab-Fab

We did it, and we survived the flights. Let me tell you flying with a kid on oxygen and in a wheelchair is no easy feat. But we had great help and admiration from many flight attendants and many other passengers. Arianna did so well on all four flights, never once complaining. I however was a bit cramped sitting in the middle seat, Arna got the window because she was in a car seat and for safety and evac purposes that was the best place.
The island was beautiful and warm, so lush and green. Our hotel room had a great view of the ocean and you could hear the waves crashing! The beaches are pristine and the water was warm enough that Arna took a dip. We mostly played in the pool so that we could keep the water out of her nose, how do you explain to docs that your kid aspirated sea water! Kenna is a natural in the water, I had a local tell me she would be great on a surf-broad, she wasn't to keen on the idea yet. We had a Monk Seal that liked to hang out on the same beach with us sunning himself, Kenna loved to just watch him.
We took a hike with Arna in a pack on Matt's back, she laughed to whole 2 1/2 miles. It was on the cliff coast line, the only way to get to ship-wreck beach and the great shell hunting. Kenna only complained on the hike back, she had got her shells and wanted to be back in the car.
We got Kenna to snorkel at Lydgate park, very calm waters due to the man made wave break. We ate fabulous local food, my fav was the Kahlua Pork.
Kenna found a coconut and we tried to bring it home, but it had bugs and the USDA would not let us take it, that's ok Kenna still thought it was cool to have one for a little while.
We did some shopping and a lot of relaxing and enjoying the company of our family. I say a huge thank you to Marilyn, this truly was the greatest gift for us all. to be able to celebrate the birthdays of two very special women in our lives. Thanks for the trip, we will never forget!

I have many pics and videos to share, and will do as soon as my computer gets fixed.

Upon arriving home I learned that sweet Lily had gone to be with Jesus and her big sister Charlotte on Sunday morning. Our hearts are broken, and she will be missed. Thank you sweet girl for sharing your sweet spirit with us all. Please pray for comfort and peace for her parents and family.

I am lame with this

I saw today that I have not updated since Nov, and that is just wrong. So much goes on and I just don't want to miss it, and I forget that I should share it with you all.

So in December, Arianna had surgery on her eye, they found an impacted sac connected to her tear duct system that could have lead to serious and unknown infections. The new duct tubes are working well, and her eye is looking great. She did get a small infection and over it quickly with meds.
We had a wonderful and quiet Christmas, our first in this house. It was great to decorate, hated putting it all away.
The new year has been good, no illnesses!!! I was, however, beginning to get concerned with Arianna's weight, she is really thin and long and bones started to poke out. After a visit with our ped we found that she is under weight by about 3 lbs( she weighs 32.9lbs). And with a full blood panel we found that she is anemic, has low blood glucose, low vitamin D and her calcium is low. Her ped is working with nutrition to get all the right stuff into her. I have been slowly increasing the amount of food she gets, its hard when she doesn't tolerate high volumes of fluid in her tummy.
She is burning allot more calories everyday, she is crawling like a pro. I am have a hard time keeping up with her. I will try to catch it on video and post it soon. She has also learned that you can stand up in a crib, not good for me. I am now totally scared that she is going to fall out on her head. The bed we would like to get for her is still under development, and we don't know when it will be available. My neighbor has offered to help Matt design and build something that will suit her needs and grow with her.

In just two weeks we will be heading to Kauai as a family. My MIL is taking hers boys and their families to the island to celebrate her 60th b-day and her mothers 91st b-day. This is going to be fun. Kenna has been talking about this trip for two years, and as the departure date approaches she is getting more and more excited, she can't wait to see the ocean.
I on the other hand am getting a bit nervous, not because I am flying, I am good with that. It is the traveling with Arianna that has got me on edge. All of the things that must be packed and all of the new rules for flying with liquids and such. I spent an hour on the phone with the airline and with TSA just to get all the info for her meds and food worked out, and the proper documentation for her oxygen concentrator. i have had to have both her ped and pulmo docs with letters stating why she must have all of her stuff, not that TSA will really read it, they just want you to have it. I will have to bring all her food in my carry on luggage to prevent it from freezing. Our flight goes from SLC to LAX with an 1 1/2 hour layover, and then five hours to Lehuie. I hope I can keep the kids happy and entertained.
I will post as many pics as I can of our wonderful vacation!

Hope all of our friends are doing well. Please know that I do think of you all often.

Here we come.....

So after much prompting by friends and family I out in our Make-a-Wish paperwork. I got the call on Monday that they would be more than happy to give Arianna anything she would like!!!! We are planning on Disney World, I know that with all the work in the world we would not be able to do this trip on our own. I can't tell you how happy this makes me! We will plan the trip for the spring, winter time is just tricky for us.

Arianna will be going in on the 1st of December to have her tear ducts reconstructed, should be an out patient deal. Pray she agrees with that.

We had pics of the girls done last week, they turned out so good, considering both girls seemed to get cranky five minuets into to the shoot. I will see if I can post a pic or two with my photographers permission. the libaray comps wont let me copy it to my blog.

well thats it for now!