So here is the most recent medical stuff that has been going on with Miss Arianna, she really has been a good girl this year.
She went in on Feb 19th for the 4 gland Botox, ABR hearing test, ECHO, and tear duct probing.
The botox is now just starting to work, and she has less spit to deal with. Her hearing has not improved to a level that the docs like so we will be trying hearing aides(and a big hugs of love goes to Erin and Zar, they gave us Charlotte's ears). Her tear drainage system is not even there in her left eye, and they opened up the right one.
We went in to see Cardio on March 2nd, and her doc feels that her ECHO looked good and to just keep the course we are on.
She also got her Synagsis shot that day, two pokes at the same time to make it pass quicker, she screamed in her own way, went blue in the face.
Next week we go back to the eye doctor and go in on the 13th for a CT scan to see if her brain can even process the input from the hearing aides.
Then the next week it's back to ENT clinic for more check-up's.
I can't say that I love all the traveling to the hospital, I just wish we could do it all in one day, it never works out that way.
I am truly grateful that Arianna has been healthy, we haven't even had to go in to her Peds office for anything more than a pimple like bump on her skull incision line, which turned out being psuedomones(sp), something you get from being in a hot tub, who knows how it came to be here but Kenna has some bumps to. We got that under control quickly.

I am also getting things ready for Kenna to start Kindergarten, that came upon me fast, I can't believe that she is 5 1/2, time flies to quickly.
Kenna and I have started "working-out" together, just a couple of goofballs dancing around the room, but we have fun doing it. And I have been helping Lacey with Jaxson's Blankies for Babes, I like to crochet and it is nice to do something for others.

So that's it in a nut shell, I will try to keep up in between all my other stuff.

The "Greatest" Grandma

This is about a month late but I wanted to share a very happy birthday with everyone. Matt's Grandma is just about the most wonderful woman in the world. She just celebrated her 89th year, and shows no signs of slowing down. She loves to play with all of her 30 some odd great-grand children. Kenna loves to visit her apartment, she has cool toys and always gets down to the floor to play with the kids. Arianna finds her way to kicking over the plants, but Grandma Ray just laughs and says, 'if she doesn't kill them, I probably will'.

I took this picture one evening when Grandma Ray and Grammy stopped by to say hi to the kids. It shows just how young at heart Grandma is.

Gotta Love a Gal with Spirit!!!

Happy Aniversary

Matt and I celebrated our 12 year aniversary on the 26th. I am now just getting around to posting cause I have been sick as a dog. We plan to do something to celebrate when we are all over this cold.

So, wow, I really can't believe how quickly the years have passed. I married a wonderful man, and he became a great father. I can only hope he feels the same.

Love ya tons husband!!!

Angel Charlotte

Our sweet friend Charlotte left us to be with the angels this morning. She got sick with RSV and it took her quickly. She was suround by her family when she passed, she will be greatly missed.

We came to know her and her wonderful parents through SOFT, Charlotte had a rare genetic disorder, Trisomy 16. She would have celebrated her fourth birthday in June. Arianna and Charlotte loved to play together, and pull eachothers oxygen out of their noses, who could really get upset when they were playing.

Our hearts are so very broken, but we know that she is now soaring with the angels, free of the limitations of her body.

Please pray for her family.

where do I sit and play mom?

So Arianna, with help from Kenna, has broken her swing. Granted the swing was not built to hold a 30 lb 2 year old, but I had hoped it would last a bit longer. Kenna was helping it to move, gave it one big shove too many and well now Arianna can lay back and touch the floor with her head. She is now hanging out in her wheelchair, cause I have nothing else to put her in. I think she is tolerating it for now. I just wish there were more seating options for her, the swing kept her entertain with its lights and music, they just don't make them for kids. Matt says he will start working on a design and then build one that will work for years to come, and use parts of the old swing, ie lights and music, he just can't get to it fast enough for me.
Question? Why is it that my kids will not nap at the same time? If Kenna just so happens to take a nap, which is rare, why won't Arianna take one too, or at least one longer than 1/2 hour. I would sure love to get in on the nap train once in a while.

A New Baby

So I am alittle late in posting this, but. We have a new little girl in our big family. Scott and Jesse welcomed Delilah Rea on Sunday(see their blog for pics, I have none). The very cool thing is that she was born on her mommy's b-day too. That makes two girls in our family to share such a special day. I thought it was pretty rare to have it happen to me with Arianna, and now to have Jesse and Lilah join our club is soooo cool.

Miss Me?

So sorry I haven't been updating like I should. I have been so crazy lately, and have been without a computer for too long. Matt uses my laptop for work and has had it for 3 weeks, but is now done with it. I have been busy with the house, we are trying to sell it and I have to work hard to keep it pretty and clean, not an easy task with miss Kenna.

We had an outing with the Ruggs last week, went to the Dino museum at Thanksgiving Point, the older kids had a great time, Arianna decided to take a nap in her wheelchair, not too much to entertain her. We also went to Shriner's Hospital yesterday to see an Orthopaedic doc, Arianna has some abnormalities with some of her vertebra, nothing can be done to fix them, but we will keep tabs on it. I am grateful for their help, it is provided at no cost to us.

I am glad this has been a quiet winter season for us, Arianna has stayed healthy and home. I hope it continues. I however have an eye infection, don't know how it happened either. I have been keeping the girls in the house, we have a really bad inversion and the air quality is soo bad, I believe they said it was 140 parts per mill yesterday, the legal limit is 33 parts per mil, gross huh. It can get deep down in your lungs and you can't even cough it out.

So in the house we will stay.