prayers please

Please keep Jaxson in you prayers tonight. he is in the hospital and all the strength you can send to him and his mommy is needed.

Arna just loves this boy!!!

update and pics of the house

Arianna has been sick all week, and we don't know what it is. Her VRP came back neg for everything. I have been treating her with oral steroids and her doc put her on omnicef due to an elevated white count of 18,600. not as bad as she has been in the past. She really just has more junk to suction, but otherwise is doing much better. Her phenobarb levels are normal, and the seizures have not returned. I know she wants to go back to school, she seems so bored at home with me.


So here are some pics of the house. no there is not one of the front, my camera died and I haven't gone back in the daytime to take one. but I will.


Living room Kitchen

back half of the back yard, front half of back yard,

Remember our house sits on a 3/4 acre lot.

back of the house

I will post pics of the bedrooms and front of the house tomorrow.

Thanks for all your prayers and concern. Arna has been doing fine, has not had another 'fling' episode but did have a space out one today. Her eyes fixed and her face went blank while we were playing. So yes I now realize this is something more than just random. I made and appt with neuro, but we wont see them until March 11th, hoping she can last that long. I will be taking her in tomorrow to get her phenobarb level checked.

I ask tonight that you pray for little Kyler. He has spina bifiada and is 6 months old. He had many complications with his gut, i.e. his bladder was on the outside which was repaired and was doing well at home. Recently he got sick and was put in the hospital. After going home on antibiotics an error was made with his med, which landed him back in the hospital with gut bleeding. Now the amount of TPN he has had to be on has destroyed his liver. He is also in need of a bowel transplant, which they do not do here in Utah, and the success rate is low. The doctors are not giving him much time.
Please pray for comfort in this difficult time.

Thanks for sharing your love and support.
Juli

Is this a Seizure? help

I don't know what is going on, this is a new thing. Arna is doing this weird jerk, fling her arms out, and go stiff, mostly while sleeping. It wakes her just barely and continues till she is fully awake. Any of my blog moms have an idea? Is this a new form of seizure?
She doesn't do any of the normal things that I have seen following her previous seizures. such as crying or collapsing into a deep sleep.
This all started after school, she was asleep when she got off the bus so we left her in her chair, and then this fling thing happened and woke her up. She was awake so we took her out of the chair and let her play on the floor until her feeding. She then started to do it again, but then promptly stopped after 2 or 3 times. I called her peds office today, told them what was going on, but that she had no other signs of illness that usually goes with her recent seizure activity. They told me it was my call to come in and have her checked out. I pondered it, and decided to watch her to see if it continued, which she was fine until her 6:00 feeding. She fell asleep and after about ten mins she started it all over again. Now in her bed asleep for the night she doing it periodiclly.
need to get a hold or neuro.

Pray for her, that this will not continue.

My Yoga Instructor

I wonder if her bed is getting to tight for her? Or maybe she is just perfecting some new Yoga pose? Either way this girl is dang flexible.

Life is going smoothly right now. Kids are seemingly healthy, and the house work is still moving forward. We got the cabinet doors stained and finished, just have to let them cure before we start putting them up. The door trim is up, now we are painting base boards and putting them on. The carpet will come after that is done. Matt did find one new thing to fix, when we took the carpet off the stairs we found that many of the treads are broken or cracked, so we must replace the whole flight of stair treads. one more full day of work there. The handrail and banister was also delivered last week, but we have to fix the stairs first. Just the finish work is left to do, but it seems to take to most time.

Today we celebrate my mom's Birthday. I am grateful she is my mom, without her I would be, well crazy. She supports me in ways that only a mother can. I can count on her to help me through the though days. And she can take care of miss Arna, that is huge. It is not an easy job to learn, but she is the only one that was willing and excited to do it. So I say thanks mom, and I love you for all that you are. Happy Birthday!!

Feeling better

So Arna slept through the night, and I did as well. She woke up feeling more like herself, and the fever is gone. I did keep her home from school, as to not spread anything, or pick anything else up.
My JOY today: Arna will let me snuggle with her. Kenna made me a cutout heart just like a Valentine, she even wrote 'i luv mom'.

FEVER!!!

So here we are, one week of school down in the new year and both kids are sick. Kenna seems to be fighting it well, just a stuffy nose. I was hoping that the bug had passed Arna over, but no. She came home from school a bit junky, not a big deal, but at 5:30 she started to fall asleep on the floor. She doesn't do that unless she isn't feeling well. I took her temp and guess what, 101.9. Lovely. I went straight for the Motrin. Within minutes of taking her temp the seizures had started. It breaks my heart to she her whole body jerk and then for her to start crying. So of course I run for a loading dose of phenobarb, 18mls, and she falls asleep within minutes of that. She has been asleep since then, only waking while we changed her diaper, g-tube dressing and put her jammies on. The fever had gone down to 100.3 and has just stayed in the lower range. Going to keep close tabs and keep the Tylenol and Motrin going in. Her doc is not in the office tomorrow, and I am not pleased with the other docs right now, hoping this is nothing more than a sniffle nose and we wont need them.

I am hoping for a calm night, I didn't get much sleep last night, just laid awake, tossed and turned, couldn't shut my brain up. and then to top it off, I was babysitting for my friend, no biggie Ella is a sweet 15 month old, easy going. But I was asked early this morning if I could watch my nephew who is 4. This is on top of the two kids my mom has in the day, and my own. I seemed to make it through the day just fine and even had a cat nap with Ella asleep on my chest, but now I am beat. I am going to hit the Airborn and then my pillow.
Pray for us all please! we need to get healthy and stay that way.
Juls