Oh my it has been too long.  So many things have happened since I last thought to post.  Arianna celebrated her 7th birthday, the years are just flying by.  She is still doing wonderful, her health has been great.  She did however just recently break her left tib and fib, we are not sure how, she does have low bone density.  The cast will come off on the 21st, counting down the days!  School will start again soon, but not soon enough for her, she is bored with mommy.

So here is my big girl, in her new wheelchair with a matching pink cast. Not to happy about it!

Big news.  Our friends from Uruguay are traveling here to Utah for some medical care they can't get for the son there.  Thiago also has Trisomy 13.  There is only one other case of  T13 in the country, and they just don't put much hope in these kids surviving so they don't help them.  I just can't wait to meet them face to face, the online friendship is just not enough anymore!

I know there is so much more to share, but the kids need my attention now.  At least I got a little update!

How proud I am!

Yesterday my wonderful and sweet Kenna donated 8 inches of her hair.  A local salon gave you a free cut and Disney gave you tickets to the Dare to Dream Ice show.  We happened to arrive just before a news crew and the taped Kenna's cut.  Here is the news spot.

http://www.ksl.com/index.php?sid=24187893&nid=148&title=disney-prompts-slc-residents-to-donate-hair-to-children-with-hair-loss&fm=home_page&s_cid=queue-2#ooid=lreWlsOTrMQ0sljkIn_duDEgB10LazR2

We also received a special invite to meet and greet the Disney cast prior to the ice show, this is only for those that donated hair.  We will have such a fun girls night out!

Warning for my friends that use suction.

I have had issues with our suction, and without this friend and her investigation skills I would not have know where to turn, please read this post.

I am so glad I have a mommy support network to rely on!

9 months and growing

Well my little boy is growing up fast.  He is now 9 months old.  He keeps me very busy. He is crawling everywhere, has been for 3 months now. He loves to help pull the clean laundry out of the baskets , chase the dog, and play in the dogs water dish. He is such a joy to have.  But he is also the reason I don't post much anymore, little time for myself as it is. 
The girls are keeping me very busy too.  Arianna loves her new school, she has a great new aide, Anna, who speaks to her in Spanish, Arna loves it and laughs!  She gets to swim every Friday, loves the water!
Kenna is loving the 3rd grade, she is a smart kid and does well in all her subjects.  I will try to keep up better, but they may not happen with all the holiday busy stuff going on.

'Family'

This is the Three Amigos, Ashton 13 (FT18), Arianna 6 (FT13), and Aaron 2 (FT18). Dr John Carey, and of course  the mommies of these amazing miracles. 

Last night was the annual Utah SOFT bbq.  We spent time talking and enjoying these kiddos.  We also talked about the sweet angels that came ans touched all our lives so briefly.  I love my SOFT family, love that we can help each other find love and healing.  Sad that this only happens once a year.

photo courtesy of the Peterson family.

Enough already

This mommy has shingles.  I really could do without one more health issue on my plate.  I just hope and pray that Ossie does not get sick with chicken pox because of my virus.  I am on an antiviral med and a topical cream to help heal the lesions on my back, but there is not much I can do for the pain, just try to keep pushing through my day.
Keep this little family in your prayers please!

Things have been interesting around  here, never a dull moment with my three kids, and us adults too.  I caught strep and didn't know it, I just felt a little run down and needed to rest, which is not uncommon with a young baby in the house, but my sister in law commented that I never go lay down when we have a family gathering, i am the social secretary and must make sure everyone is taken care of, but that night i wasn't myself.  it took me two days and a my sweet cousin from VA, who was visiting a t the time, to have a pos strep test for me to think maybe I better get checked out.  Well yes I was sick, and Matt got it, and Then Arianna came down with it.  Arianna also contracted a stomach bug that had fluids coming out from everywhere,  poor kid.  It was a very rough week.  We have all since been on antibiotics and seem to be better.  Arianna had lost so much weight with the bug that her doc changed her formula, it has a higher cal and fat count per ML so that we can get more goods into her without adding more volume, we are still trying to get to a full feed however, it is thicker and her tummy is still adjusting to it, in the mean time she is continuing to wretch and vomit on it, I hope that it ends soon.

Ossie has been a little trouper through all of this, not demanding to much more from mommy, but not liking that I have to do so much for Arianna.  He has learned to sit unsupported, which is great, he is refluxing less now.  He rolls like a champ, even rolled right off the bed!  He is trying to get up on his knees, no I am not ready for another crawler.  He is six months old today!!!!  can't believe how fast the time has gone by.

Kenna has been in school for three weeks now, and she is loving the third grade.  She will turn 9 in a month, that time has gone by too fast too.

These are some new family pics!  Love my family!