Hee Hee

So we have this large bay window in our kitchen, and the birds seem to fly into it at least once a day. I can't help but laugh because it seems to be the same bird always doing it. It does however scare the crud out of me each time you hear the bang.

Yesterday Kenna and I got to spend the afternoon together, we went to see Disney on ice, thanks to Hope Kids. What I would do without this wonderful support group I don't know. We are able to do so many things at no cost to us, movies and outings are things we just can't find the spare funds to do anymore. I am so grateful to them for all that they do for families struggling though medical issues.
I was happy to see my sweet girl smillin and having a good time. We had a good day without any fighting, that seems to be the norm for us two. I know she is six and had to grow up too fast, had to learn about so much that a little one should just not have to deal with. She struggles often with everything Arianna throws at us, she mostly hates to trips to the hospital, she misses both mom and Arianna. She and I are trying to find a way to better cope with everything, how she can express her feelings without snapping at me, and me to not snap at her just cause I am exhausted.

Arianna is doing well and seems to be of the worst of this nasty RSV. I am so happy that our hospital stay was so short, she seems to do better at home where she can get around. Just lying in a bed doesn't help her loosen the crap in her lungs, but rollin an crawling though the house seems to do the trick. I am eagerly waiting the day she can return to school!!

Trisomy Awareness Day

Today, March 13, is Trisomy 13 Awareness day. A day to celebrate those that have touched our lives. Do something 'extra'ordinary today. Our Lucky 13!!!

Going home

The docs trust that I can take care of Arianna at home. She is stable and cranky, good sign. I am just getting things ready and we our out the door. Thanks for all of your thoughts and prayers.
I am ready to get some rest in my own bed!!! And Arianna wants to play on the floor.

I will do my best to let you all know how we are doing.
Thanks
Julianna

Just confirmed at 12:00 a.m.: Arianna has RSV. I am now looking at a much longer hospital stay.

I can't sleep and I have had no appetite.

I need some good vibes sent my way, please.

Arianna is Sick

Arianna had a fever of 105 yesterday, today we have been admitted to PCMC. Her lungs look bad, and we are waiting on cultures to come back. Please pray for her.

Getting Settled

We are still finding our place in the new house, and I have yet to set up Internet, need to find the right service for the right price.
Kenna is enjoying that she can ride the school bus, even though I can drive her just as quick, she likes the walk to the bus stop with mom and Thirsty.
Arianna loves the new space she has to explore, and I love that I don't have to worry about the stairs anymore. My biggest problem is unwinding all the O2 hose from around her.
Not much else has been going on, all is quiet and we like it that way!

Another Trisomy Angel

Please pray for our friends the Lint family. Their sweet son Zion flew home with the angels today.