Feeling better

So Arna slept through the night, and I did as well. She woke up feeling more like herself, and the fever is gone. I did keep her home from school, as to not spread anything, or pick anything else up.
My JOY today: Arna will let me snuggle with her. Kenna made me a cutout heart just like a Valentine, she even wrote 'i luv mom'.

FEVER!!!

So here we are, one week of school down in the new year and both kids are sick. Kenna seems to be fighting it well, just a stuffy nose. I was hoping that the bug had passed Arna over, but no. She came home from school a bit junky, not a big deal, but at 5:30 she started to fall asleep on the floor. She doesn't do that unless she isn't feeling well. I took her temp and guess what, 101.9. Lovely. I went straight for the Motrin. Within minutes of taking her temp the seizures had started. It breaks my heart to she her whole body jerk and then for her to start crying. So of course I run for a loading dose of phenobarb, 18mls, and she falls asleep within minutes of that. She has been asleep since then, only waking while we changed her diaper, g-tube dressing and put her jammies on. The fever had gone down to 100.3 and has just stayed in the lower range. Going to keep close tabs and keep the Tylenol and Motrin going in. Her doc is not in the office tomorrow, and I am not pleased with the other docs right now, hoping this is nothing more than a sniffle nose and we wont need them.

I am hoping for a calm night, I didn't get much sleep last night, just laid awake, tossed and turned, couldn't shut my brain up. and then to top it off, I was babysitting for my friend, no biggie Ella is a sweet 15 month old, easy going. But I was asked early this morning if I could watch my nephew who is 4. This is on top of the two kids my mom has in the day, and my own. I seemed to make it through the day just fine and even had a cat nap with Ella asleep on my chest, but now I am beat. I am going to hit the Airborn and then my pillow.
Pray for us all please! we need to get healthy and stay that way.
Juls

Wealth of Info

I just haven't been up to it, or maybe because there is not much going on, I have neglected to update.
With the girls returning to school my mornings have been crazy. Arianna is up and dressed by 6:45, and on the bus by 7:20. She has a new bus driver that is still learning the ropes. A new school building, her class room is a lot smaller than the previous school and I am not sure I like that. She has a new nurse ridding the bus and taking care of her at school. And a new teacher, very nice, but also learning the ropes. I am trying to be nice and give all the changes a chance, see how it all works out. Arianna doesn't seem to mind any of the changes, she is just so easy going and loves everyone.
Arna's school went on a field trip to the Gateway Discovery, really not a nifty for a kid in a wheelchair, she did like to listen to the bong in the ball room, made her smile. We played a bit in the water fountains, and jammed in the sound and music mixing booth. Overall she really just loved the bus ride, very bouncy on the big yellow bus.
Kenna started at her new school as well, and seems to be adjusting and loving it. I am very impressed with her teacher and the style in which the kids are learning. I have seen more, and found that Kenna knows more than I thought in this one week in her new class. Kenna is now being the teacher around the house, showing me and Arna flash cards of sight words and teaching us what the word is. I LOVE IT.
Matt is ever busy with the house. I have helped with paint, all done. And now they are working on the flooring in the kitchen, base boards, changing light sockets and outlets, and purchasing and installing the appliances. We still plan the be in before February.

I had to lower Arnas crib to the lowest it could go, I found her arching her way out backwards the other morning, her head and shoulders were out and she was pushing with all her might on her heels to finish the job. Well now she is mad because she can't turn on her toys while just laying on her back, she has to push up tall, or sit up to do anything. Maybe it will be a benefit, and get her sitting more!!!
Still no word yet on her walker, it is still in medical review, whatever that means. I hope they don't take all year to decide.

And I am stealing my resolution from Natalie.

Find Joy in the Journey

it is not so much a resolution, but a way to live. How to deal with whatever may cross you path. and she has taught me that life continues, and faith will see you through.

now you are all up to date!

Arianna Walking

It may not look like it to most, but Arianna is doing all the work, her PT is really just holding her upper body. Arianna moved her legs forward, it was like it just clicked today how she was supposed to do it, and she had fun. She did this for about 20 minutes or so, the PT was the one that needed the rest.

Sorry it is sideways, I don't know how to fix it on this computer.

The Sum of It

For some reason, I do not yet know myself, I have just not felt like spending time on the computer, or updating my blog when I am on. So I will try to sum up what is going on.

We had a very nice Christmas, it was made just a bit easier by not having to travel to two separate houses to visit with the Grands. I much enjoyed the sleeping in that Kenna let us all have, in fact I do believe I was the first one up at 8:30, and that was just to let Thirsty out. Yes we now have our sweet doggy. Another couple that had a dog in OR decided to go pick up theirs and asked if we would split the fuel cost and they would bring Thurston home for us. Couldn't pass that up. He came home on the Saturday before Christmas, what a gift. He loves to be around everyone, but sleeps in Arianna's room. I love the way they play with each other, she rolls on him and he just licks her. We have really enjoyed having him as a part of our family.
Matt is getting so much work done at the house and we expect to be moving in in about three weeks. We pick out paint colors over the weekend, and he and my dad are working at getting all the walls covered. Our flooring arrived last Tuesday, just have to have the paint done before we start on that. net will come the carpet in the living room, the rest of the house has really nice hard wood floors. We ordered new cabinet doors, custom work, should be done on the 5th. Things really do seem to be moving along now!
I got Kenna registered at her new school, she will start back on the 4th, but go off track on the 25th. we couldn't get her on the same track, but we were able to keep her in the a.m. class. Her teacher is very nice, they also have a bunny in their class room. Should be fun.
As for Arna and her health, it seems to be good. Her gut has been bugging her, I think all the antibiotics messed her up, we are giving her pro-biotics to help it balance out. I think she is ready to start back at school, she has had enough of me I'm sure.
Well that's the best sum up I can do.

Simple Sunday

So this latest illness seems to be croup. But you really wouldn't know that Arna is sick, other than the horrible barky cough. She has done more sitting up on her own today than she has done in the past month. She is very proud of herself. Right now she is having a little 'with my dinner' snooze, wouldn't it be nice to multi task like that.

Even though her lungs look like crap, I think we will be over this quickly.

Thanks for your thoughts and prayers, they always help her, and me through these rough patches.