Meta What?

So Arianna has been sick since last Wednesday. She had a seizure in the early am and then had a fever of 103 at 6:00 when Matt got up to feed her. We got the fever down to 101 but she was still having break through seizures. I took her into the doc that morning and they did all the normal work up, VRP, CBC and Phenobarb level blood work, and a chest x-ray. The chest looked a little cloudy, but her air movement was good. CBC showed a slight increase in her white blood cell(shows viral infect), and her platelets were high. The VRP, which takes a day to run, came back as Meta-Pneumo virus. I was stumped, I didn't know what this was. Her doc says it it a very nasty cousin to RSV, and it could be worse in many ways for her. So our big fight was to get the fever down, which would stop the seizures, and hope that her O2 needs would not increase. I have been very faithful in using her Vest therapy to break the junk in her lungs up, she has coughed out some good stuff. Her O2 has not increased above 3/4 ltrs, and the fever broke on Friday.
I have been dealing with major g-tube leaking, when your sick your digestive system slows down and the foods in your stomach do not move out as quickly. So I slowed her feeds and have been making sure she has a BM everyday so she doesn't get any further backed up. She is still pretty cranky and cries when she coughs too hard, but we are still at home and I know she likes that. She knows that at the hospital they make her lay in a bed and she can't roll around and explore. Besides, I have heard from a friend that works at the hospital that they are busting at the seams and have no empty beds, pretty unusual for April. I just hope spring decides to settle in for good and all the sick crap will move on .
Just keep Arianna in you prayers for now.

Ice Cream Please

This is a video I took at the mall yesterday. Arianna just loves ice cream, and how can I say no to her sweet face, and well she also grabed my hand to get it. You can see just how well she knows how to use her mouth, it is the airway that doesn't always know what to do. Maybe someday she will get the hang of it.

Ears

So we are in the process of getting Arianna hearing aids. I took her in to get the ear molds made but it could not be done until her ear tubes were removed. See the tubes that were placed last May had come out into the ear canal and her ear drums have healed over, the tubes were in the way of the mold goo and it would not have worked right. So this morning I took her to her Ped and they just flushed them out. We will be going to the school for the deaf and blind on Tuesday and the will do the molds, set the frequency on the aids and we will be on our way. I just hope she will leave them in.

I have been so busy. I have had two showings of our house this week, and I have been crazy busy keeping it clean. Sadly though both buyers love the house but not the kitchen, it is too small for them. I just don't know what to do anymore, I have changed the table so it looks as big as it is, but it still doesn't help. I hope that the right buyer just hasn't been there yet. Pray that they will find us soon cause Arianna is try to roll downstairs again.

Not much else is going on , and that is good.

So I feel like a bad mom lately. Friday I walked Kenna to pre-school, mind you it's just across the street, and I left Arianna on the floor of her bedroom playing with her gears. When I came back, about 10 mins later, I could hear her crying. I had come in through the garage and started up the stairs to go check on her and I found her in the middle of our living room. If you have not been to my house I will explain why this is so scary. Arianna's bedroom is at the end of a long hall which is a the top of eight stairs which begins in the living room. So needless to say Arna rolled out of her room, down the hall, rolled down the eight stairs and crawled into the living room. I scooped her up, checked her out all over, nothing broken, and then I just started to cry. How could I have let this happen. I took her into the doc and she confirmed that she was fine, but she did tell me to never leave her alone, even if I am just walking across the street. Well I don't know about taking her everywhere, but I will not leave her on the floor that's for sure.
I look at it this way, Arianna just wants to be like all the big kids, and take a tumble down the stairs.

Yesterday Matt bought Kenna her very own 4-wheeler, I am not sure if I am ready for her to be grown up enough to ride one by herself. She is excited and a little scared, Matt is going to spend a lot of time teaching her how to do it responsibly. She is very excited to go camping and ride all over the land. Let's just hope she doesn't break anything her first time out.

Now I am just waitng for Matt to buy me a toy I can ride. Maybe next year.

Update to all the med junk

So Arnas CT went well, she was given Versed only, she just looked like she was in la-la land, and just came out if it quickly. The ENT told us that she has a common defect in her middle ear, can't remember the name of it, but it will cause degenerative hearing loss, some day she will loose her hearing. But we can go ahead with hearing aids, I just hope she will leave them on.

Over the weekend Arna starts to feel sick, coughing allot and then crying afterwards. I took her to the doc on Monday and her Chest x-ray looks terrible. Her right lung is full of junk, but she was still moving air and saturating at 99. We got her a shot of antibiotics, which hurt like the dickens, and put her on oral steroids to open up the airways. She was been such a trooper and seemed to be feeling well, we went out for a walk yesterday and enjoyed the warm sunshine. Last night just after I got in to bed she started to de-sat in her sleep, down to 80, so I turned up the O2 and repositioned her on a Boopy to prop her up a bit, and she was doing better so I turned the O2 back down to normal and she stayed that way all night. This morning she is rearing to go again, and wants me to hold her so she can give me hugs and kisses, which she is now figuring out how to bite my lip(thanx Boofus). I left her in bed though, 6:00 is too early for her to be awake, she needs her beauty sleep. I am hoping she gets over this lung junk quickly, I really don't want to spend any time in the hospital.

A side note for those of you that don't know, I added a link for Jaxson's Blankies. If you or someone you know has a kiddo in needed of good cuddle blankie, please request one there. Lacey started it and has recruited my help and making blankies for sick kiddos. Most of them are out of state and Lacey just mails them off, but we did get to hand deliver one to Ben. He and his mom were in town visiting family when he got sick and admitted to PCMC. We were excited to give the blankie to his mom and then meet Ben as well. Please help in prayers to get them back home to NH, they miss the rest of their family.
Please visit the link sometime to see all the kiddos that have received a blankie, and maybe even make a donation to help us make more.

I will try to keep up on Arnas lungs the best I can. My parents are loaning me a computer to have at home since Matt needs mine allot lately.

Simple Joys

So I took the girls to the mall on Friday evening, I just had to get out of the house. Kenna thought it would be a fun idea to go ride on the carousel, i agreed. So that was the first thing she did upon arriving there, Arianna is a little to wiggly to ride with me holding her. Kenna was all smiles and it made me remember just why I love being a mom. I thought back to when I was young and all the things I wanted to do when I was a 'grown-up'. A doctor perhaps, maybe even a lawyer, or travel the world and discover some part of ancient history that could change the future. But that all seems to trivial to what I do today. I am a healer, a kiss can do wonders for a bump on the knee. I stand up for and fight for those that can not do it for themselves. And I travel the world in my own home, the couch can become many things, like a boat, a fortress, even an airplane. It can take us to far off lands to fight Dragons and rescue those in distress. I have become a horse that carries my young princess to find Prince Charming. I have found the Tickle Monster, it lives in my hands!!!
For all that my little wonderful children have helped me to become, I can not begin to express the joy that fills my heart. I will forever be taught by them, and I can only hope that in some small way I can teach them the simple joys that do not come by way of money and gifts. That true joy and happiness comes from within, from what we do for each other out of love.
Although I have my days when it seems Kenna is trying to push me over the edge of control. I have to remind myself that she is also trying her own wings, seeing just how high she can soar without my hands holding on to hers. She has had to grow up very quickly, and alot of it has been done on her own, since I have to spend alot of time doing some much for Arianna. I hope she can see that I love her very much, and what I do for both of them is very selfless, that she will take that in to her life and character.

Now that is my deep and profound thoughts for the day! ;)