So Arianna has been sick since last Wednesday. She had a seizure in the early am and then had a fever of 103 at 6:00 when Matt got up to feed her. We got the fever down to 101 but she was still having break through seizures. I took her into the doc that morning and they did all the normal work up, VRP, CBC and Phenobarb level blood work, and a chest x-ray. The chest looked a little cloudy, but her air movement was good. CBC showed a slight increase in her white blood cell(shows viral infect), and her platelets were high. The VRP, which takes a day to run, came back as Meta-Pneumo virus. I was stumped, I didn't know what this was. Her doc says it it a very nasty cousin to RSV, and it could be worse in many ways for her. So our big fight was to get the fever down, which would stop the seizures, and hope that her O2 needs would not increase. I have been very faithful in using her Vest therapy to break the junk in her lungs up, she has coughed out some good stuff. Her O2 has not increased above 3/4 ltrs, and the fever broke on Friday.
I have been dealing with major g-tube leaking, when your sick your digestive system slows down and the foods in your stomach do not move out as quickly. So I slowed her feeds and have been making sure she has a BM everyday so she doesn't get any further backed up. She is still pretty cranky and cries when she coughs too hard, but we are still at home and I know she likes that. She knows that at the hospital they make her lay in a bed and she can't roll around and explore. Besides, I have heard from a friend that works at the hospital that they are busting at the seams and have no empty beds, pretty unusual for April. I just hope spring decides to settle in for good and all the sick crap will move on .
Just keep Arianna in you prayers for now.
2 comments:
Hey Julie. Hope things are improving! Seizures, how scary! Let me know if you need anything or just want to talk. Missing my Boofus bad today but otherwise just keeping on.
Oh I am so sorry to hear that Arianna is so sick. I hope she gets feeling better soon.
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